Advance care planning for individuals with intellectual and developmental disabilities: A state-by-state content analysis of person-centered service plans
Intellectual and Developmental Disabilities
Older adults are a rapidly growing segment of the intellectual and developmental disabilities (IDD) population. Advance care planning (ACP) is recommended as a best practice for adults with IDD, yet, adoption remains low. For individuals receiving Medicaid services, regular meetings maintain the person-centered planning (PCP) process. Content analysis was used to examine data from public documents across the United States to identify the frequency of ACP in PCP and the ways it manifests. Results indicate most states had evidence of ACP within the PCP process with notable variation to the extent. Findings suggest many PCP documents lack content specific to late-life transitions. Included are examples of the ways states have integrated ACP into PCP that can serve as a guide.
Link to Published Version
McGinley, J., Marsack-Topolewski, C. N., Church, H. L., & Knoke, V. (2021). Advance care planning for individuals with intellectual and developmental disabilities: A state-by-state content analysis of person-centered service plans. Intellectual and Developmental Disabilities, 59(4), 352–364. https://doi.org/10.1352/1934-9556-59.4.352