Ciara Woods

Date Approved

2018

Degree Type

Open Access Senior Honors Thesis

Department or School

Special Education

First Advisor

Ana Claudia Harten

Second Advisor

Ana Claudia Harten

Third Advisor

David C. Winters, Ph.D.

Abstract

Cleft lip and palate are craniofacial anomalies affecting more than 200,000 infants in teh United States per year. Although this condition is quite common, parents are often confused and uninformed when they discover their newborn has a cleft lip and/or palate. In time, parents can learn of the surgical repairs and therapies, but what about the management, treatment, effects on education, risk factors, genetics, and any other lasting effects on the newborn? Many parents often wonder if their baby can be fed properly, if the child will have trouble learning to talk, or how to tell relatives and friends about the matter, There are a lot of concerns and questions that play into this condition. The goal of the educational guide is to provide resources and knowledge to families experiencing CL/P disorders to eliminate confusion and anxiety, and, instead, promote confidence, support, advocacy, and understanding for those impacted by CL/P.

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